GEt involved
Become a Periodic Paralysis power partner!
World Periodic Paralysis Day (WPPD) Power Partners promote awareness of Periodic Paralysis (PP) by participating in activities, raising funds, and spreading the word about PP in their schools, workplaces, and communities.
What’s Inside:
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✔︎ Quick Facts Guide
Learn the essentials about PP in minutes
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✔︎ All You Need to Know About PP Guide
A deeper dive into symptoms, diagnosis, and management
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✔︎ 6 Ways To Get Involved Guide
Show your support in many different ways!
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✔︎ 1-Page WPPD Flyer
Share with friends, family, or healthcare providers to raise awareness
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✔︎ Printable Postcard + Sign
Raise awareness in your community
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✔︎ Social Media Graphics & Profile Frames
Show your support online
Who Can Become a Power Partner?
We welcome anyone passionate about raising awareness for Periodic Paralysis! Power Partners can include:
- People living with Periodic Paralysis (PP)
- Supporters and loved ones of those affected by PP
- Neurologists, geneticists, endocrinologists, physical therapists, nurses, and general practitioners who want to improve diagnosis and care.
- Rare Disease Advocates & Organizations focused on awareness, research, and policy change for rare conditions.
- Medical & Science Students – Future doctors, researchers, and genetic counselors who want to learn more about PP.
- Nonprofit & Community Leaders – Those passionate about disability rights, health equity, and patient advocacy.
- Social Media Influencers & Content Creators – Especially those in the health, rare disease, or chronic illness spaces.
- Educators & School Counselors – To help students who may experience unexplained symptoms and need support.
- Corporate Partners – Companies interested in supporting rare disease awareness through sponsorships or employee engagement.
What Do Power Partners Do?
We believe global awareness begins with local action! As an Ambassador, you play a vital role in elevating Periodic Paralysis awareness. Leading up to World Periodic Paralysis Day on March 23, Ambassadors lead efforts to spread the word in their communities. Each Ambassador’s contributions are unique, but activities may include:
- Raising awareness in your school, workplace, or community
- Sharing your story through your customizable Ambassador Page
- Challenging friends and family to raise awareness or donate
- Reaching out to local media and healthcare providers
- Participating in or hosting events and activities
- Joining a supportive community of fellow advocates
No matter how you contribute, you’ll be part of a global movement making a difference for those impacted by PP.
What is World Periodic Paralysis Day?
World Periodic Paralysis Day, celebrated on March 23, is dedicated to raising global awareness of Periodic Paralysis. Co-led by patient advocacy organizations worldwide, WPPD unites the international PP community to:
- Inspire action
- Increase public understanding
- Amplify the voices of individuals living with PP
Together, we aim to reduce diagnostic delays, improve patient outcomes, and foster a sense of community. Use the hashtag #WorldPPDay to join the conversation and help spread awareness.
How to Become a Power Partner
- Sign Up: Register to become a WPPD Ambassador and create your customizable Ambassador Page to share your story and connection to this cause.
- Review the Toolkit: After signing up, you’ll receive the WPPD Ambassadors Toolkit, which includes resources and tips for spreading awareness and hosting events.
- Spread the Word: Share your Ambassador Page with friends and family. Challenge them to join you in raising awareness or make a donation.
- Join the Movement: Connect with fellow advocates and take part in WPPD activities to inspire hope and resilience.
Get Your WPPD Gear!
Show your support by purchasing exclusive WPPD merchandise! From t-shirts to tote bags, every purchase helps raise awareness and funds for vital initiatives.
T-Shirt Giveaway
Because Everyone loves a freebie! Celebrate World Periodic Paralysis Day 2025 in style. Thanks to our partners at Xeris, get your WPPD 2025 T-shirt while supplies last.
**Our T-Shirt Giveaway is now CLOSED. Thank you to all those who participated and submitted the forms. Please check your email for if you requested a link.**
Link only valid for WPPD Bella and Canvas T-Shirts
Events
Join virtual and local events worldwide as we connect, learn, and inspire hope on
March 23, 2025.
World Periodic Paralysis Day Virtual Meetup
Details
TIME
23/03/2025
11:00 am
event url
Oraganizer
Periodic Paralysis Support Network
Address
Country: -1
State: -1
Power Up Chicago Day 3
Details
Power up Chicago! Select buildings in the Chicago skyline will be illuminating for the inaugural World Periodic Paralysis Day! Get your family, friends and come see these beacons of hope lit up to raise awareness.
TIME
23/03/2025
5:00 pm
Oraganizer
PPA
No valid address data found.
Power Up Chicago Day 2
Details
Power up Chicago! Select buildings in the Chicago skyline will be illuminating for the inaugural World Periodic Paralysis Day! Get your family, friends and come see these beacons of hope lit up turquoise to raise awareness.
TIME
22/03/2025
5:00 pm
Oraganizer
PPA
No valid address data found.
Power Up Chicago Day 1
Details
Power up Chicago! Select buildings in the Chicago skyline will be illuminating for the inaugural World Periodic Paralysis Day! Get your family, friends and come see these beacons of hope lit up turquoise to raise awareness.
TIME
21/03/2025
5:00 pm
Oraganizer
PPA
Address
Street Address: Downtown Chicago
Street Address 2: 201 E Randolph St
City Name: Chicago
Country: US
State: IL
Xeris Pharmaceuticals® Virtual Event
Details
Join Us! Xeris Pharmaceuticals® is hosting an upcoming virtual event. Hear from PPP Patient Mentors & Engagers. Gain valuable insights, and connect with others living with Periodic Paralysis (PP). Together, we’ll explore how to raise awareness for this rare and often misdiagnosed condition, while building meaningful relationships within the PP community. You won’t want to miss this opportunity to connect with us on World Periodic Paralysis Day!
This event is 3pm ET/ 2pm CT
TIME
23/03/2025
3:00 pm
Oraganizer
Xeris Pharmaceuticals®
Address
Country: -1
State: -1
