Stories
Ralph B.
I received my diagnosis of Hypokalemic Periodic Paralysis in 2001, at the age of 33. That May, I experienced such weakness in my legs that I had to physically lift
Ashton
A Rare Disease, but A Simple Test I was diagnosed with Andersen-Tawil Syndrome in 2022. It was a 6 year adventure of various doctors and crazy tests. But the final
Janine K.
Janine K. lives in Wisconsin, where she is a retired financial manager. Although she had lived with muscle weakness since childhood, she didn’t experience her first full-body paralysis episode until
Kirsten A.
Kirsten A. lives in New Hampshire, where she works as an attorney. She first developed Primary Periodic Paralysis (PPP) symptoms in 2013 and finally received a diagnosis three years later.
Dennis L.
Dennis L. lives with his wife in Texas, where he is a retired business owner. He first developed Primary Periodic Paralysis (PPP) symptoms in 1973, when he was 14 years
Leslie W.
Leslie W. lives in Florida, with her service dog, an English bulldog. A lover of the arts, Leslie grew up dancing ballet and playing piano and now enjoys nature photography.
Paul W.
Paul W., who is 30, lives in California, where he is finishing up a college degree program in economics. Paul experienced his first paralysis episode when he was 20. During
Monica Cramer
It has been a long road and is still challenging but I am in a much better place than I was a few years ago. I finally received the correct
Heidi Ditri
My daughter was diagnosed with periodic paralysis first by her doctor. On the day of my daughter’s diagnosis her doctor shared that she suspected I had it as well. At
Larry Cochran
I grew up in Tennessee, USA. In 1947, I was about 6 years old. It was difficult to have a diagnosis at this time because there was so little known
Christine Conrado – Staskiewicz
Christine was born in New Jersey and moved to Central Florida when she was seven years old. Christine has a bachelor’s degree in Business Management and Marketing from Florida Metropolitan
Cienna Ditri
President of the PPA. Cienna Ditri is a model, influencer, speaker, and consultant. She has consulted for some of the biggest household name brands including Victoria’s Secret, JCPenney, and J
