I received my diagnosis of Hypokalemic Periodic Paralysis in 2001, at the age of 33. That May, I experienced such weakness in my legs that I had to physically lift

A Rare Disease, but A Simple Test I was diagnosed with Andersen-Tawil Syndrome in 2022. It was a 6 year adventure of various doctors and crazy tests. But the final

Janine K. lives in Wisconsin, where she is a retired financial manager. Although she had lived with muscle weakness since childhood, she didn’t experience her first full-body paralysis episode until

Kirsten A. lives in New Hampshire, where she works as an attorney. She first developed Primary Periodic Paralysis (PPP) symptoms in 2013 and finally received a diagnosis three years later.

Dennis L. lives with his wife in Texas, where he is a retired business owner. He first developed Primary Periodic Paralysis (PPP) symptoms in 1973, when he was 14 years

Leslie W. lives in Florida, with her service dog, an English bulldog. A lover of the arts, Leslie grew up dancing ballet and playing piano and now enjoys nature photography.

Paul W., who is 30, lives in California, where he is finishing up a college degree program in economics. Paul experienced his first paralysis episode when he was 20. During

It has been a long road and is still challenging but I am in a much better place than I was a few years ago. I finally received the correct

My daughter was diagnosed with periodic paralysis first by her doctor. On the day of my daughter’s diagnosis her doctor shared that she suspected I had it as well. At

Christine was born in New Jersey and moved to Central Florida when she was seven years old. Christine has a bachelor’s degree in Business Management and Marketing from Florida Metropolitan

President of the PPA. Cienna Ditri is a model, influencer, speaker, and consultant. She has consulted for some of the biggest household name brands including Victoria’s Secret, JCPenney, and J